Intersection of medicalization and reproductive autonomy: Challenging the barriers faced by women with disabilities

https://doi.org/10.53730/ijhs.v9nS1.15484

Authors

  • Mili Grace Kurian M G University, Kottayam, Kerala, India
  • Bindumol V C Government Law College, Trivandrum, Kerala, India

Keywords:

Intersectionality, Medicalization, Pathologization, Reproductive Autonomy, Reproductive Justice

Abstract

This paper explores the medicalization of disability and its detrimental effects on the reproductive autonomy of women with disabilities. Medicalization frames disability as a medical condition that requires intervention, often leading to the assumption that disabled individuals are incapable of making informed reproductive decisions. Drawing on case studies of women with disabilities, including those with muscular dystrophy, cerebral palsy, and psychiatric conditions, the paper highlights how medicalized views result in coercive reproductive practices such as forced sterilization, limited access to assisted reproductive technologies (ART), and the pathologization of pregnancy. These practices are rooted in harmful stereotypes about disabled women’s ability to parent and a lack of understanding within healthcare systems. By analyzing these issues, the paper critiques how medicalization reinforces discriminatory attitudes and institutional barriers, restricting disabled women’s Reproductive rights. It calls for a shift toward a rights-based, inclusive approach to reproductive healthcare that upholds the autonomy of women with disabilities, advocating for policy reforms to ensure informed consent, equitable access to reproductive services, and the dismantling of medicalized frameworks that undermine disabled women’s reproductive agency.

Downloads

Download data is not yet available.

References

Brinkman, A.H., Rea-Sandin, G., Lund, E.M., Fitzpatrick, O.M., Gusman, M.S., Boness, C.L., Scholars for Elevating Equity and Diversity (SEED), 2023. Shifting the discourse on disability: Moving to an inclusive, intersectional focus. Am J Orthopsychiatry 93, 50–62. https://doi.org/10.1037/ort0000653 DOI: https://doi.org/10.1037/ort0000653

Casebolt, M.T., 2020. Barriers to reproductive health services for women with disability in low- and middle-income countries: A review of the literature. Sex Reprod Healthc 24, 100485. https://doi.org/10.1016/j.srhc.2020.100485 DOI: https://doi.org/10.1016/j.srhc.2020.100485

DasGupta, S., 2020. 38. Medicalization, in: Adams, R., Reiss, B., Serlin, D. (Eds.), Keywords for Disability Studies. New York University Press, pp. 120–121. https://doi.org/10.18574/nyu/9781479812141.003.0041 DOI: https://doi.org/10.18574/nyu/9781479812141.003.0041

Devkota, H.R., Kett, M., Groce, N., 2019. Societal attitude and behaviours towards women with disabilities in rural Nepal: pregnancy, childbirth and motherhood. BMC Pregnancy Childbirth 19, 20. https://doi.org/10.1186/s12884-019-2171-4 DOI: https://doi.org/10.1186/s12884-019-2171-4

Fletcher, J., Yee, H., Ong, B., Roden, R.C., 2023. Centering disability visibility in reproductive health care: Dismantling barriers to achieve reproductive equity. Womens Health (Lond) 19, 17455057231197166. https://doi.org/10.1177/17455057231197166 DOI: https://doi.org/10.1177/17455057231197166

Frederick, A., 2017. Risky Mothers and The Normalcy Project: Women with Disabilities Negotiate Scientific Motherhood. Sage Publications, Inc. 31, 74–95. DOI: https://doi.org/10.1177/0891243216683914

Furgalska, M., de Londras, F., 2024. Towards a rights-based approach for disabled women’s access to abortion. Med Law Rev 32, 486–504. https://doi.org/10.1093/medlaw/fwae026 DOI: https://doi.org/10.1093/medlaw/fwae026

Horner-Johnson, W., Klein, K.A., Campbell, J., Guise, J.-M., 2021. Experiences of Women With Disabilities in Accessing and Receiving Contraceptive Care. J Obstet Gynecol Neonatal Nurs 50, 732–741. https://doi.org/10.1016/j.jogn.2021.07.005 DOI: https://doi.org/10.1016/j.jogn.2021.07.005

Iezzoni, L.I., Rao, S.R., Ressalam, J., Bolcic-Jankovic, D., Agaronnik, N.D., Donelan, K., Lagu, T., Campbell, E.G., 2021. Physicians’ Perceptions Of People With Disability And Their Health Care: Study reports the results of a survey of physicians’ perceptions of people with disability. Health Affairs 40, 297–306. https://doi.org/10.1377/hlthaff.2020.01452 DOI: https://doi.org/10.1377/hlthaff.2020.01452

iezzoni, L.I., Wint, A.J., Smeltzer, S.C., Ecker, J.L., 2015. “How did that happen?” Public responses to women with mobility disability during pregnancy. Disability and Health Journal 8, 380–387. DOI: https://doi.org/10.1016/j.dhjo.2015.02.002

Matin, B.K., Williamson, H.J., Karyani, A.K., Rezaei, S., Soofi, M., Soltani, S., 2021. Barriers in access to healthcare for women with disabilities: a systematic review in qualitative studies. BMC Womens Health 21, 44. https://doi.org/10.1186/s12905-021-01189-5 DOI: https://doi.org/10.1186/s12905-021-01189-5

Onwuachi-Saunders, C., Dang, Q.P., Murray, J., 2019. Reproductive Rights, Reproductive Justice: Redefining Challenges to Create Optimal Health for All Women. J Healthc Sci Humanit 9, 19–31.

Patel, P., 2017. Forced Sterilization of women as discrimination. Public Health Reviews 38. DOI: https://doi.org/10.1186/s40985-017-0060-9

Powell, R.M., 2021. From Carrie Buck to Britney Spears: Strategies for Disrupting the ongoing reproductive oppression of Disabled People. Virginia Law Review 107. DOI: https://doi.org/10.2139/ssrn.3902743

Powell, R.M., Stein, M.A., 2016. Person with Disabilities and Their Sexual, Reproductive, and Parenting Rights: An International and Comparative Analysis. Frontiers of Law in China 11.

Purdy, L., 2006. Women’s reproductive autonomy: medicalisation and beyond. J Med Ethics 32, 287–291. https://doi.org/10.1136/jme.2004.013193 DOI: https://doi.org/10.1136/jme.2004.013193

Purdy, L.M., 1996. Reproducing persons: issues in feminist bioethics. Cornell University Press, Ithaca, NY. DOI: https://doi.org/10.7591/9781501729553

Rothler, R., 2017. Disability rights, reproductive technology, and parenthood: unrealised opportunities. Reproductive Health Matters 25, 104–113. https://doi.org/10.1080/09688080.2017.1330105 DOI: https://doi.org/10.1080/09688080.2017.1330105

Silvers, A., Francis, L., Badesch, B., 2016. Reproductive Rights and Access to Reproductive Services for Women with Disabilities. AMA Journal of Ethics 18, 430–437. https://doi.org/10.1001/journalofethics.2016.18.4.msoc1-1604 DOI: https://doi.org/10.1001/journalofethics.2016.18.4.msoc1-1604

Published

08-01-2025

How to Cite

Kurian, M. G., & Bindumol, V. C. (2025). Intersection of medicalization and reproductive autonomy: Challenging the barriers faced by women with disabilities. International Journal of Health Sciences, 9(S1), 1–11. https://doi.org/10.53730/ijhs.v9nS1.15484

Issue

Section

Peer Review Articles