Individual and management factors in public health associated with failures and complications in patients with hemophilia in Colombia

https://doi.org/10.53730/ijhs.v6nS1.5837

Authors

  • José Valderrama International Doctorate Program in Public Health, Simón Bolívar Andean University, Sucre – Bolivia and Collaboration & Pragmatism
  • José Moreno International Doctorate Program in Public Health, Simón Bolívar Andean University, Sucre – Bolivia and Fundación Santafé de Bogotá, Colombia
  • Lenis Urquijo Fundación Santafé de Bogotá, Colombia and Collaboration & Pragmatism
  • Julieth Uriza Fundación Santafé de Bogotá, Colombia and Collaboration & Pragmatism

Keywords:

Public health, health system, hemophilia, health management skills

Abstract

The management of public health in Colombia reflects inequities in health and a great lag in the development of capacities at the national level. The stewardship of the health system presents serious difficulties associated with the decentralization process, as well as institutional weaknesses in the territorial entities as determining factors in the proper functioning of the system. To date, comprehensive health care models with a territorial approach, enshrined in current regulations, have not been implemented to guarantee quality health care for patients with hemophilia and other coagulopathies in Colombia. Orphan diseases such as hemophilia and other coagulopathies, although they have a low prevalence, are chronically debilitating, serious and highly complex to manage, so they require comprehensive approaches that guarantee access, quality, timeliness and efficiency in the management of institutions responsible. In addition, HCV and HIV coinfection is a relevant health problem in these patients.

Downloads

Download data is not yet available.

References

Alter HJ, KH (2008). The hazards of blood transfusion in historical perspective. . 112 .

Balkaransingh P, YG (2018). Novel therapies and current clinical progress in hemophilia A. 9 (2).

Brown TM, LW (2009). Health-related quality of life and productivity impact in haemophilia patients.

overcome the barrier of pessimism. British Journal of Haematology, 131-134.

Franchini M, F. E. (2010). Mild hemophilia . A. J Thromb Haemost. , 8(3):421-32.

Fundación Hospital de la Misericordia. (2009). Protocolo de manejo para pacientes con hemofilia. Bogotá, Colombia Haemophilia , 911-7.

High Cost Account - Ministry of Health and Social Protection. (2015). Situation of Hemophilia in Colombia 2015. Bogotá: Colombian Fund for high-cost diseases.

Ghany MG, SD (2008). Diagnosis, management, and treatment of hepatitis C: an update. 49 .

Hemophilia, WF (2015). Guidelines for the treatment of hemophilia. Haemophilia , 1365-2516.

Majluf-Cruz, JG-C. (2013). Hemophilia. Medical Gazette of Mexico , 149 - 308.

Kadir RA, S. L. (2012). Inherited Bleeding disorders in older women. Maturitas, 35-41.

Kulkarni R, S. J. (2009). Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: A report from The Centers for Disease Control and Prevention’s (cdc) Universal Data Collection (udc) project. Haemophilia, 15(6):1281-90.

Ministry of Health and Social Protection. (15 of 01 of 2016). www.minsalud.gov.co. Retrieved from https://www.minsalud.gov.co/Documentos%20y%20Publicaciones/Pol%C3%ADtica%20de%20Atenci%C3%B3n%20Integral%20en%20Salud.pdf

Ministry of Health and Social Protection, I. d. (2015). Clinical protocol for prophylaxis treatment of people with severe hemophilia A without inhibitors. Bogota.

Health Ministry. (6 of 06, 2021). www.minsalud.gov.co . Retrieved from www.minsalud.gov.co: https://www.minsalud.gov.co/sites/rid/paginas/

MSPS-Colombia. (2016). Technical study of the calculation mechanism to define the amount that the eps and eoc must contribute on the resources of the upc of the contributive and subsidized regime and their distribution, for the management of the orphan disease. Directorate for the Regulation of Benefits, Costs and Rates of Health Insurance.

UNDP. (2009). http://www.undp.org/content/dam/undp/library/capacity-development/spanish/Capacity_Development_A_UNDP_Primer_Spanish.pdf. Obtained from Text on capacity development of the United Nations Development Program: http://www.undp.org/content/dam/undp/library/capacity-development/spanish/Capacity_Development_A_UNDP_Primer_Spanish.pdf

Srivastava A, BA-B. (2013). Guidelines for the management of hemophilia. Haemophilia , 1-47.

U del Rosario, CP (2016). Departmental index of competitiveness. Bogota: CEPEC.

World Federation of Hemophilia. (2012). Guidelines for the treatment of hemophilia. Montreal, Quebec: Blackwell.

Published

13-04-2022

How to Cite

Valderrama, J., Moreno, J., Urquijo, L., & Uriza, J. (2022). Individual and management factors in public health associated with failures and complications in patients with hemophilia in Colombia. International Journal of Health Sciences, 6(S1), 4521–4539. https://doi.org/10.53730/ijhs.v6nS1.5837

Issue

Section

Peer Review Articles