Impact of husband’s social support for mothers of children with autism in India

Manisha Choudhury; Payal Chandel

doi:10.53730/ijhs.v6nS1.6745

Authors

Manisha Choudhury
manishachoudhury3119@gmail.com
Ph.d Scholar (Allied and Behavioural Sciences), Amity School of Allied and Behavioural Sciences (AIBAS), Amity University Rajasthan, SP-1, Kant Kalwar, RIICO Industrial Area, NH-11C, Jaipur, Rajasthan, India
Payal Chandel Associate Professor, Department of Psychology, Central University of Haryana

Abstract

Aim of the study: The main aim of the study is to investigate husband’s social support for mother of children with autism. Method: Interview was conducted for 20 mother participants who were married and having children with autism aged between 4-15 years. Data collected was analyzed by using interpretative phenomenological analysis (IPA) approach. Results: The data analysis was divided in five domains. First, the impact on marriage relationship; second, husband’s role in parenting children with autism; third, mother’s perception regarding husband’s social support; fourth, indicated factors influencing husband social supports; and fifth the result explored the effect of husband’s social support for mother. The discussion and limitations of the present study has been considered. Application: The findings highlight the areas for rehabilitation professionals who should also focus on the relationship pf parents for better improvement of the child and family.

Downloads

Download data is not yet available.

References

Almansour, M. A., Alateeq, M. A., Alzahrani, M. K., Algeffari, M. A., & Alhomaidan, H. T. (2013). Depression and anxiety among par- ents and caregivers of autistic spectral disorder children. Neurosciences, 18(1), 58–63.

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and beha- vioural disorders in young adults with intellectual disability: Cul- tural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198. https://doi.org/10.1111/j.13 65-2788.2005.00768.x

Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with charac- teristics of autism. Journal of Autism and Developmental Disor- ders, 17(4), 565–576.

Chan, K. K. S., Lam, C. B., Law, N. C. W., & Cheung, R. Y. M.(2018). From child autistic symptoms to parental affective symp- toms: A family process model. Research in Developmental Dis- abilities, 75, 22–31. https://doi.org/10.1016/j.ridd.2018.02.005.

Crowell, J. A., Keluskar, J., & Gorecki, A. (2019). Parenting behavior and the development of children with autism spectrum disorder. Comprehensive Psychiatry, 90, 21–29. https://doi.org/10.1016/j. comppsych.2018.11.007.

Desiningrum, D. R. (2016). Psikologi anak berkebutuhan khusus [Psychology of children with special needs] (G. Ilmu [ed.], 1st ed). Psikosains.

Desiningrum, D. R. (2018). Grandparents’ roles and psychological well-being in the elderly: A correlational study in families with an autistic child. Enfermer´ıa Cl´ınica, 28, 304–309. https://doi.org/ 10.1016/S1130-8621(18)30175-X.

Dinisman, T., Andresen, S., Montserrat, C., Stro´zik, D., & Stro´zik, T. (2017). Family structure and family relationship from the child well-being perspective: Findings from comparative analysis. Children and Youth Services Review, 80(June), 105–115. https:// doi.org/10.1016/j.childyouth.2017.06.064

Dutta, A., Hazarika, M., Nath, K., Das, B., Das, S., & Bora, P. (2017). Impact of stress, coping, social support, and resilience of families having children with autism: A north east India-based study. Asian Journal of Psychiatry, 28, 133–139. https://doi.org/10.1016/j.ajp.2017.03.040

Ekas, N. V., Pruitt, M. M., & McKay, E. (2016). Hope, social rela- tions, and depressive symptoms in mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 29–30, 8–18. https://doi.org/10.1016/j.rasd.2016.05.006

Etournaud, A. (2017). Parents of children with autism spectrum disorder: Investigation into best practice intervention. Bond University.

Greenlee, J. L., Winter, M. A., & Diehl, J. J. (2018). Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review. Research in Autism.

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457. https://doi.org/10. 1037/a0019847.

Hodgetts, S., Savage, A., & McConnell, D. (2013). Experience and outcomes of stepping stones triple P for families of children with autism. Research in Developmental Disabilities, 34(9), 2572–2585. https://doi.org/10.1016/j.ridd.2013.05.005.

Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health- related quality of life. Families, Systems and Health, 29(3), 232–252. https://doi.org/10.1037/a0025341.

Karaer, Y., & Akdemir, D. (2019). Parenting styles, perceived social support and emotion regulation in adolescents with internet addic- tion. Comprehensive Psychiatry, 92, 22–27. https://doi.org/10. 1016/j.comppsych.2019.03.003.

Kayfitz, A. D., Gragg, M. N., & Robert Orr, R. (2010). Positive experiences of mothers and fathers of children with autism. Journal of Applied Research in Intellectual Disabilities, 23(4), 337–343. https://doi.org/10.1111/j.1468-3148.2009.00539.x

Larson, E. (2008). Psychological well being and meaning making when caregiving for children with disabilities: Growth through difficult times or sinking inward. American Occupational Therapy Foundation, 30, 78–86.

Lyons, A. M., Leon, S. C., Phelps, C. E. R., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal of Child and Family Studies, 19(4), 516–524. https://doi.org/10. 1007/s10826-009-9323-5.

Mann, A. R. (2013, January). The experiences of mothers of children with autism in Jamaica: An exploratory study of their journey. ProQuest Dissertations and Theses, 276. http://scholarcommons. usf.edu/cgi/viewcontent.cgi?article¼5919&context¼etd.

Ozturk, Y., Riccadonna, S., & Venuti, P. (2014). Parenting dimensions in mothers and fathers of children with Autism Spectrum Disor- ders. Research in Autism Spectrum Disorders, 8(10), 1295–1306. https://doi.org/10.1016/j.rasd.2014.07.001.

Petrongolo, M. (2014). Stress in mothers of newly diagnosed children with autism spectrum disorders: Barriers to care, use of support services, and child behavior (pp. 1–90).http://digitalcommons.pcom.edu/cgi/viewcontent.cgi?article¼1299&context¼psychology_dissertatins.

Pe´rez-Marfil, M. N., Laynez-Rubio, C., Hueso-Montoro, C., Fernan´dez-Alca´ntara, M., Cruz-Quintana, F., & Garc´ıa-Caro,M. P. (2016). Feelings of loss and grief in parents of children diagnosed with autism spectrum disorder (ASD). Research in Developmental Disabilities, 55, 312–321.

Rosa, E. M., Putri, R., Ismail, D., & Haksari, E. L (2021). The influence of parenting style and mother's mental health from mental health in children who have siblings with autism.

Santrock, J. W. (2018). A topical approach to life-span development (9th ed.). McGraw-Hill.

Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenom- enological analysis theory, method and research. Sage. https:// philpapers.org/rec/SMIIPA-3.

Sun, X., Allison, C., Auyeung, B., Baron-Cohen, S., & Brayne, C. (2014). Parental concerns, socioeconomic status, and the risk of autism spectrum conditions in a population-based study. Research in Developmental Disabilities, 35(12), 3678–3688. https://doi.org/ 10.1016/j.ridd.2014.07.037.

Timmons, L., & Ekas, N. V. (2018). Giving thanks: Findings from a gratitude intervention with mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 49(January), 13–24. https://doi.org/10.1016/j.rasd.2018.01.008.

Walter, S. M., & Smith, M. J. (2016). Mothering a child with autism. Archives of Psychiatric Nursing, 30(5), 600–601. https://doi.org/ 10.1016/j.apnu.2016.01.016https://doi.org/10.1016/ j.ridd.2016.05.007