Physical wellness among adolescents with hemoglobinopathic disorders

https://doi.org/10.53730/ijhs.v6nS6.9861

Authors

  • Naba’a Hussein Eidan Master Student, Pediatric Health Nursing, College of Nursing, University of Babylon
  • Nuhad Mohammed Aldoori Assistant Prof., Pediatric Health Nursing, College of Nursing, University of Babylon

Keywords:

hemoglobinopathic disorders, adolescents, physical wellness

Abstract

Background: Hemoglobinopathy is a group of genetic disorders transmitted from parents to their children spread all over the world and is characterized by a decrease or absence of the normal synthesis of hemoglobin, as in thalassemia, or the abnormal structure of hemoglobin as in sickle cell anemia, has an impact on physical and Psychosocial wellness, which leads to increased fears about physical appearance, and interference in the process of gaining independence and healthy relationships with family, friends, and society. Aims: To assess physical wellness among adolescents with hemoglobinopathic disorders. As well as to Identify association between the physical wellness with certain demographic data. Methods: A cross-sectional descriptive study design was used during the period from February 2, 2022 to May 2, 2022. This study was conducted in Babylon Governorate on (150) patients with hemoglobinopathic disorders at Babylon Teaching Hospital for Women and Children; 50% of patients aged 10-19 years were selected. Data were collected using a modified questionnaire and analyzed electronically by using SPSS 26. Results: Less than two-fifths of patients range in age from (10–13) years with mean age (of 14.7), half of them are males and the other half are females. 

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References

Rouh AlDeen, N., Osman, A. A., Alhabashi, M. J., Al Khaldi, R., Alawadi, H., Alromh, M. K., Alyafai, E. G., & Akbulut-Jeradi, N. (2021). The Prevalence of β-Thalassemia and Other Hemoglobinopathies in Kuwaiti Premarital Screening Program: An 11-Year Experience. Journal of personalized medicine, 11(10), 980. https://doi.org/10.3390/jpm11100980

Alzahrani, M., Felimban, R., Alzahrani, F., & Qadah, T. (2020). Hemoglobin Disorders Among Anemic Patients: a Cross-Sectional Studyfrom Jeddah City, Western Saudi Arabia. Clinical laboratory, 66(12), 10.7754/Clin.Lab.2020.200334.

Faraj, S. A., Insaf, A. I., & Abd, H. N. (2017). physical growth patterns in transfusion-dependent thalassemic children at wasit city. World Journal of Pharmaceutical Research, 6 (13), 69-76. https://doi.org/10.20959/wjpr201713-9819

Al-Allawi, N., Al Allawi, S., & Jalal, S. D. (2021). Genetic epidemiology of hemoglobinopathies among Iraqi Kurds. Journal of community genetics,12(1), 5-14. https://doi.org/10.1007/s12687-020-00495-z

Abd K., R., Odah J., Q. & Abd N., S. (2020). Hemoglobinopathies According To Blood Groups In Thi-Qar Governorate. University of ThiQar Journal of Medicine, 18 (2), 68-77. https://doi.org/10.32792/utq/utjmed/18/2/6

Colombatti, R., Casale, M., & Russo, G. (2021). Disease burden and quality of life of in children with sickle cell disease in Italy: time to be considered a priority. Italian Journal of Pediatrics, 47(163).

Northwestern university, (2022). Wellness at northwestren avialable at :

https://www.northwestern.edu/wellness/8-dimensions/physical-wellness.html

Smaldone, A., Manwani, D., Aygun, B., Smith-Whitley, K., Jia, H., Bruzzese, J. M., Findley, S., Massei, J., & Green, N. S. (2019). HABIT efficacy and sustainability trial, a multi-center randomized controlled trial to improve hydroxyurea adherence in youth with sickle cell disease: a study protocol. BMC pediatrics, 19(1), 354. https://doi.org/10.1186/s12887-019-1746-6

Forrester, A.B., Barton-Gooden, A., Pitter, C.P., & Lindo, J.L. (2015). The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica. International Journal of Qualitative Studies on Health and Well-being, 10.

http://dx.doi.org/10.3402/qhw.v10.28104

Issa,S.H., Mohammed,S.H., & Hasan,A.A.(2018). Self-concept in Relation to Inheritance Blood Diseases among Adolescents in Babylon Governorate–Iraq. Indian Journal of Public Health Research & Development, 9(7).182_187.

DOI Number: 10.5958/0976-5506.2018.00636.8

Kambasu, D. M., Rujumba, J., Lekuya, H. M., Munube, D., & Mupere, E. (2019). Health-related quality of life of adolescents with sickle cell disease in subSaharan Africa: A cross-sectional study. BMC Hematology, 19(1). https://doi.org/10.1186/s12878-019-0141-8

Elzaree, F. A., Shehata, M. A., El Wakeel, M. A., El-Alameey, I. R., AbuShady, M. M., & Helal, S. I. (2018). Adaptive functioning and psychosocial problems in children with beta thalassemia major. Open Access Macedonian Journal of Medical Sciences, 6(12), 2337.

Shareef, S., & Obaid, K. (2017). Assessment of Knowledge of Adolescents with Thalassemia Major Regarding Iron Chelating Therapy. International Journal of Science and Research (IJSR), 6(11), 625-627. https://doi.org/10.21275/ART20177111

Saeed, W., & Mohammed, N. (2020). Psycho-social Development of Thalassemic and Healthy Adolescents : Comparative Study. International Journal of Psychosocial Rehabilitation, 24(06), 13411–13421. DOI: 10.37200/IJPR/V24I6/PR261300

Ishfaq, K., Diah, N. M., Ali, J., Fayyaz, B., & Batool, I. (2018). Psychosocial problems faced by thalassemia major patients of district multan, Pakistan. Pakistan Paediatric Journal, 42(1), 22-26.

Batool, I., Ishfaq, K., & Bajwa, R. S. (2017). Psychosocial Burden among Thalassemia Major Patients: An Exploratory Investigation of South Punjab, Pakistan. Pak Pediatric Jauranl ; 41(3): 158-62.

Hakeem, G. L. A., Mousa, S. O., Moustafa, A. N., Mahgoob, M. H., & Hassan, E. E. (2018). Health-related quality of life in pediatric and adolescent patients with transfusion-dependent ß-thalassemia in upper Egypt (single center study). Health and Quality of Life Outcomes, 16(1), 59. https://doi.org/10.1186/s12955-018-0893-z

Baiee, H. A., Ameer, M. A., Hadi, B. A., Kamel, M., & Alaa, H. (2015). Depression among parents of children with Thalassemia in Babylon ProvinceIraq during the year 2014. Medical Journal of Babylon, 12(4), 999-1005

Hassan, S. M. E., & Azzab, S. E. S. H. I. El. (2016). Study of the Health Instructions Effect on Quality of Life and Psychological Problems among Children with Thalassemia. International Journal of Studies in Nursing, 1(1), 16. https://doi.org/10.20849/ijsn.v1i1.92

Al-Hakeim, H. K., Abdulla, A. K., Almulla, A. F., & Maes, M. (2020). Hereditary haematologic disorders in Najaf province-Iraq. Transfusion clinique et biologique : journal de la Societe francaise de transfusion sanguine, 27(4), 213–217. https://doi.org/10.1016/j.tracli.2020.08.008

Yengil, E., Acipayam, C., Kokacya, M. H., Kurhan, F., Oktay, G., & Ozer, C. (2014). Anxiety, depression and quality of life in patients with beta thalassemia major and their caregivers. International Journal of Clinical and Experimental Medicine, 7(8), 2165–2172.

Kumaravel, S. K., Jagannathan, S., Balaji, J., Karthick, N. R., & Pugalendhiraja, K. V. (2017). Psychosocial problems associated with transfusion dependent thalassemia in a tribal population. Pediatric Oncall Journals, 13 (4), 90-102. DOI : 10.7199/ped.oncall.2016.45

Mikael, N. A., & Al-Allawi, N. A. (2018). Factors affecting quality of life in children and adolescents with thalassemia in Iraqi Kurdistan. Saudi medical journal, 39(8), 799 – 807.

Abdulsattar,N.T& Hattab,K.T. (2017). Burden of major beta thalassemia and its treatment upon adolescents at Ibn Albaldy pediatric and maternal hospital in Baghdad city.

Saxena, A. (2017). Growth Retardation in Thalassemia Major Patients. International Journal of Human Genetics,3(4) 237-246. https://doi.org/10.1080/09723757.2003.11885858

Venty, V., Rismarini, R., Puspitasari, D., Kesuma, Y., & Indra, R. M. (2018). Depression in children with thalassemia major: prevalence and contributing factors. Paediatrica Indonesiana, 58(6), 263-268. http://dx.doi.org/10.14238/pi58.6.2018.263-8 Origina

Kshaish, R. H., & Aziz, A. R. (2020). Assessment of Daily Living Activities of Thalassemic School Age Children at Thalassemia Center in Ebn- Albaldy Maternal and Child Hospital at Baghdad City. International Journal of Scientific and Research Publications, 6 (9), 659_669.

Moyen, E., Mpandzou, G.A., Boukoulou, M.J.D., Diatewa, J.E., Batchi-Bouyou, A.L., Ossou-Nguiét,P.M. &Moyen, G. (2021) Psychological Experience of Children and Adolescents with Homozygous Sickle Cell Disease in Brazzaville. Open Journal of Pediatrics, 11,35-49. https://doi.org/10.4236/ojped.2021.111004

Suryasa, I. W., Rodríguez-Gámez, M., & Koldoris, T. (2021). The COVID-19 pandemic. International Journal of Health Sciences, 5(2), vi-ix. https://doi.org/10.53730/ijhs.v5n2.2937

Suryasa, I. W., Rodríguez-Gámez, M., & Koldoris, T. (2022). Post-pandemic health and its sustainability: Educational situation. International Journal of Health Sciences, 6(1), i-v. https://doi.org/10.53730/ijhs.v6n1.5949

Batara, R., Ardani, I. G. A. I., Wardani, I. A. K., Windiani, I. G. A. T., Adnyana, I. G. A. N. S., & Setiawati, Y. (2022). Psychogenic dysphagia in children, and the success of family-based treatment: Case report. International Journal of Health & Medical Sciences, 5(1), 163-168. https://doi.org/10.21744/ijhms.v5n1.1894

Published

28-06-2022

How to Cite

Eidan, N. H., & Aldoori, N. M. (2022). Physical wellness among adolescents with hemoglobinopathic disorders. International Journal of Health Sciences, 6(S6), 1739–1751. https://doi.org/10.53730/ijhs.v6nS6.9861

Issue

Section

Peer Review Articles